If you have a medically fragile child at home we created a handy door sign asking visitors to wash their hands, take off their shoes and not come in if they are sick. We've found it super helpful to set proper expectations and avoid potentially awkward conversations with anyone who stops by : ) Click on the link above to download a printable .pdf.
Lift me up is a non-profit program dedicated to providing ergonomic baby wearing carriers to families who have children with special needs.
For mothers (& fathers) of tracheostomy children to come together for support, advice, and friendship. It is a closed Facebook group but a great network of members.
Trach Mommas is a non-profit that offers peer support 24-7 for Louisiana, and nationally advocacy and emergency preparedness and disaster Releif. We send out disposable medical supplies within 48 hrs from a disaster strike. We are on the family committee of the Global Tracheostomy Collaborative and a Member of the National Partnership for Inclusive Disaster Strategies.
Cecily’s Closet offers free belly bands (fabric wraps with Velcro) to children with feeding tubes. So cool!
The iron on patch that provides access to g-tubes without damage to clothing!
Beautifully designed G-tube pads / mic-key button feeding tube pads covers.