Resources
General Resources
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Welcome — Door Sign .PDF
If you have a medically fragile child at home we created a handy door sign asking visitors to wash their hands, take off their shoes and not come in if they are sick. We've found it super helpful to set proper expectations and avoid potentially awkward conversations with anyone who stops by : ) Click on the link above to download a printable .pdf.
Going Out Checklists
We created some super helpful checklists of things we need to remember to pack whenever we go out. We have lists for when we go to doctor’s appointments, a hospital overnight stay, preschool, vacation, the granparent’s house and even the beach. We literally use this every day! We recommend copying and pasting these into to your notes application if you have an iPhone. You can create a checklist that you can share with your family and collaborate on the simple task of leaving the house. 🤷♀️
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Required to have an "Oxygen in Use" sign for your home? We create this printable sign just for you! Download the .pdf here.
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Occupational Therapy Tools
We were so fortunate to have Rachael from The Sensory Project share some amazing occupational therapy tips and trick with our StomaStoma family. Here is a list of tools you can buy online that she uses and recommends
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Travel Bag & Equipment Checklist
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Lift Me Up
Lift me up is a non-profit program dedicated to providing ergonomic baby wearing carriers to families who have children with special needs.
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Complex Child
Trach Resources
Mom's Of Trach Babies
For mothers (& fathers) of tracheostomy children to come together for support, advice, and friendship. It is a closed Facebook group but a great network of members.
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Trach Mommas
Trach Mommas is a non-profit that offers peer support 24-7 for Louisiana, and nationally advocacy and emergency preparedness and disaster Releif. We send out disposable medical supplies within 48 hrs from a disaster strike. We are on the family committee of the Global Tracheostomy Collaborative and a Member of the National Partnership for Inclusive Disaster Strategies.
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Global Trach
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G-Tube Resources:
Cecilys Closet
Cecily’s Closet offers free belly bands (fabric wraps with Velcro) to children with feeding tubes. So cool!
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Tummy Tunnels
The iron on patch that provides access to g-tubes without damage to clothing!
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Fashion Tubies
Beautifully designed G-tube pads / mic-key button feeding tube pads covers.