Resources


General 

Travel Bag & Equipment Checklist

We created this Google Document a while back with a list of all the things you don't want to forget for your travel bag. You can download this list or at least copy and past it as a starting point for own checklist.

StomaStoma - Welcome Door Sign .PDF

If you have a medically fragile child at home we created a handy door sign asking visitors to wash their hands, take off their shoes and not come in if they are sick. We've found it super helpful to set proper expectations and avoid potentially awkward conversations with anyone who stops by : ) Click on the link above to download a printable .pdf.

Lift Me Up

Lift me up is a non-profit program dedicated to providing ergonomic baby wearing carriers to families who have children with special needs.

Complex Child

A source for information on children who are medically complex or have disabilities!

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Trach Resources:

Mom's Of Trach Babies

For mothers (& fathers) of tracheostomy children to come together for support, advice, and friendship. It is a closed Facebook group but a great network of members.

Trach Mommas

Trach Mommas is a non-profit that offers peer support 24-7 for Louisiana, and nationally advocacy and emergency preparedness and disaster Releif. We send out disposable medical supplies within 48 hrs from a disaster strike. We are on the family committee of the Global Tracheostomy Collaborative and a Member of the National Partnership for Inclusive Disaster Strategies.

Global Trach

From what we've seen, this is the most current, one stop shop for general Trach resources and links.

 

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G-Tube Resources:

Cecilys Closet

Cecily’s Closet offers free belly bands (fabric wraps with Velcro) to children with feeding tubes. So cool!

Tummy Tunnels

The iron on patch that provides access to g-tubes without damage to clothing!

Fashion Tubies

Beautifully designed G-tube pads / mic-key button feeding tube pads covers.