At StomaStoma we believe in the power of community and sharing our stories of courage and victory.
Meet our rad little friend, Isaac. Isaac was born at 31 weeks, with a rare birth defect - Esophageal Atresia, his esophagus wasn't connected. Early surgeries to repair it ultimately caused his vocal cords to scar together and become paralyzed. When he was 4 months old we made the decision to trach him, and it was the best decision we ever made.
He went from being a sick, tired baby connected to oxygen and later bipap to a happy, squirmy, full of life baby literally overnight!
Isaac is 9 now, he has undergone 27 major surgeries - most related to his esophagus, some related to his airway. We have recently begun the journey towards decannulating Isaac, beginning with placement of a titanium rod to open up his now fused ribcage. As we have seen success with placement of the rod his team has begun discussing the process for trach removal in the next couple of years.
Isaac is a funny, resilient, bike riding, scouting, dancing little boy - who happens to have a trach and a feeding tube!